PROJECT

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OUR PROJECT

TITLE
Together We Stand: Promoting adherence in end-stage renal disease through a family-based self-management intervention
CONTEXTUALIZATION
With an increasing prevalence, end-stage renal disease is a global concern due to rising healthcare costs. In 2016, Portugal had the highest prevalence rate of people on hemodialysis among European countries.
This renal replacement therapy requires significant lifestyle changes for both patients and their families, as it involves attendance to an inflexible regimen of dialysis sessions. Additionally, it is recommended that individuals on hemodialysis adhere to a set of complex health behaviors, including vascular access care, dietary and fluid intake restrictions, regular physical activity, and management of polypharmacy protocols.
Non-adherence in hemodialysis is associated with poor clinical health outcomes, lower treatment adequacy, and increased risk of early mortality. Worldwide, non-adherence rates of up to 86% have been reported.
Over the past 20 years, researchers and clinicians have made numerous efforts to develop interventions to facilitate self-management in hemodialysis. However, traditionally, these programs are patient-centered, undervaluing the importance of family support in behavioral change and psychosocial adjustment to treatments.
Therefore, it is of utmost importance to reinforce the development of intervention programs aimed at people with end-stage renal disease and their families.
PROJECT DESCRIPTION
In a family-oriented intervention, the relational, emotional, and educational needs of the family system are emphasized. This project aims to develop, implement, and evaluate the effectiveness of a family-centered disease management intervention for adults on hemodialysis and their families.
Overall, this project aims to:
  • improve disease/treatment-related knowledge
  • facilitate the development of self- and family-management skills to maximize treatment adherence and minimize the psychosocial impacts of renal therapies
  • promote positive communication between the triad patient/family/healthcare professionals
  • prevent the erosion of family support and reduce patient/family isolation

 

INTERVENTION MODALITIES
  • in person
  • online
START DATE
July 2018
FINANCING
211.100,18 Euros
FUNDING ENTITY
Projeto financiado pelo fundo FEDER, através do COMPETE2020- Programa Operacional Competitividade e Internacionalização (POCI), e pela Fundação para a Ciência e Tecnologia na sua componente Orçamento de Estado.
REFERENCE
POCI-01-0145-FEDER-030228
INSTITUTION
University of Aveiro
CO-INSTITUTIONS
University of Porto and REQUIMTE – Chemistry and Technology Network – Association
OTHER COLLABORATING INSTITUTIONS
CINTESIS – Research Center for Health Technologies and Services
ETHICS COMMITTEE VERDICT
Approved, with reference no. 670_05/2020 UICISA:E