FEEDBACK

WHAT THEY SAY ABOUT US

“For me, it was a great help. At first, I was a little skeptical, but then I realized there were other people with experience (…) and their experience helped me to better understand what I read about the disease and what scared me. And it [joining the program] was the best thing I did, because I think I changed a lot emotionally. In the first two sessions, I had a completely different attitude towards life.”
person on dialysis
“There was a great connection between everyone. I think there was an empathy that emerged normally and the psychologists guided this group very well (…). I often found myself, at the end of the session, drawing conclusions and thinking ‘this is really well done’. Everyone should participate in this type of group (…). Even though I was starting hemodialysis, the life stories I heard made me understand what my life could be like and how I could see the positive side and solve problems and have solutions.”
person on dialysis
“By participating in this group, I think I simplified the disease. At the same time, I also think that I finally internalized it (…). Really, with this group, the doubts and fears I had regarding the disease disappeared. That’s why I said that I simplified the disease. Now I see it as a perfect natural thing, a normality.”
person on dialysis
“Hearing the stories of other participants and hearing them share their fears was very important! We shared feelings and thoughts that we sometimes keep to ourselves. Sharing them with other people we didn’t know was liberating. It helped us realize that our fears were not absurd and that other people have very similar fears (…). I realize that there have been things that have improved in the way I manage problems. Realizing that certain things go through my head that are, in the end, normal and natural, helped me a lot.”
person on dialysis
“I always thought that being online, there would be a huge limitation for people to really vent what they felt, or say what they felt, share what they were experiencing… But I think everyone participated and, during the sessions, we all grew together as a group and ended in a very beautiful way, which is missing each other and being sad about the end!”
family member of a person on dialysis
“I learned a lot, cleared up doubts, removed ‘exaggerations’ that I had in my head about certain subjects.”
family member of a person on dialysis
“We, as caregivers, are more isolated. (…) I think participating in the group and sharing was really good because, for the first time, I felt supported, I felt accompanied. And that was very good and left a very good feeling. I finished the sessions with a feeling of happiness. I feel comfortable, I feel good because I don’t feel alone. I feel more accompanied!”
family member of a person on dialysis
“Participating in the group helped me to understand certain things, like some of my negative reactions, and realize that I can change them. It’s helping me a lot with this! (…). I really liked this part of knowing how to express my feelings. This helped me a lot. There was that negative part of not wanting to solve anything and arriving home frustrated and without a solution. The program really taught me the right way to deal with each other [couple]… I think it did me a lot of good!”
family member of a person on dialysis