SCIENTIFIC PUBLICATIONS

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PAPERS PUBLISHED IN INTERNATIONAL JOURNALS
2019
  • Sousa, H., Ribeiro, O., Paúl, C., Costa, E., Miranda, V., Ribeiro, F., & Figueiredo, D. (2019). Social support and treatment adherence in patients with end-stage renal disease: A systematic review. Seminars in Dialysis, 32(6), 562–574. https://doi.org/10.1111/sdi.12831
2021
  • Figueiredo, D., Sousa, H., Frontini, R., Paúl, C., Costa, E., Miranda, V., Ribeiro, F., & Ribeiro, O. (2021). “The secret questions in a box”: What do patients and families really want to know about end-stage renal disease? Kidney International Reports, 6(4):S345. https://doi.org/10.1016/j.ekir.2021.03.828
  • Frontini, R., – Sousa, H., Ribeiro, O., & Figueiredo, D. (2021). “What do we fear the most?”: Exploring fears and concerns of patients, family members and dyads in end-stage renal disease. Scandinavian Journal of Caring Sciences, 35(4), 1216–1225. https://doi.org/10.1111/scs.12940.
  • Sousa, H., Ribeiro, O., Costa, E., Frontini, R., Paúl, C., Amado, L., Miranda, V., Ribeiro, F., & Figueiredo, D. (2021). Being on hemodialysis during the COVID-19 outbreak: A mixed-methods’ study exploring the impacts on dialysis adequacy, analytical data, and patients’ experiences. Seminars in Dialysis, 34(1), 66–76. https://doi.org/10.1111/sdi.12914.
  • Bündchen, D., – Sousa, H., Afreixo, V., Frontini, R., Ribeiro, O., Figueiredo, D., & Costa, E. (2021). Intradialytic exercise in end-stage renal disease: An umbrella review of systematic reviews and/or meta-analytical studies. Clinical Rehabilitation, 35(6), 812–828. https://doi.org/10.1177/0269215520986784.
  • Sousa, H., Oliveira, J., Figueiredo, D., & Ribeiro, O. (2021). The clinical utility of the Distress Thermometer in non-oncological contexts: A scoping review. Journal of Clinical Nursing, 30(15-16), 2131–2150. https://doi.org/10.1111/jocn.15698.
  • Sousa, H., Ribeiro, O., Afreixo, V., Costa, E., Paúl, C., Ribeiro, F., Figueiredo, D. (2021). ‘Should WE stand together?’: A systematic review and meta-analysis of the effectiveness of family-based interventions for adults with chronic physical diseases. Family Process, 60(4), 1098–1116. https://doi.org/10.1111/famp.12707.
  • Sousa, H., Ribeiro, O., & Figueiredo, D. (2021). End-stage renal disease is not yours, is not mine, is OURS: Exploring couples lived experiences through dyadic interviews. Hemodialysis International, 25(3), 361-371. https://doi.org/10.1111/hdi.12929.
  • Sousa, H., Ribeiro, O., Paúl, C., Costa, E., Frontini, R., Miranda, V., Oliveira, J., Ribeiro, F., & Figueiredo, D. (2021). “Together We Stand”: A pilot study exploring the feasibility, acceptability, and preliminary effects of a family-based psychoeducational intervention for patients on hemodialysis and their family caregivers. Healthcare, 9(11), 1585-1599. https://doi.org/10.3390/healthcare9111585.
2022
  • Sousa, H., Ribeiro, O., Christensen, A. J., & Figueiredo, D. (2022). Caring for parents with end-stage renal disease: What do adult children face and how do they cope?. Journal of Clinical Nursing, 31(23-24), 3454–3463. https://doi.org/10.1111/jocn.16172.
  • Sousa, H., Frontini, R., Ribeiro, O., Paúl, C., Costa, E., Amado, L., Miranda, V., Ribeiro, F., & Figueiredo, D. (2022). Caring for patients with end-stage renal disease during COVID-19 lockdown: What (additional) challenges to family caregivers?. Scandinavian Journal of Caring Sciences, 36(1), 215–224. https://doi.org/10.1111/scs.12980.
  • Bártolo, A., Sousa, H., Ribeiro, O., & Figueiredo, D. (2022). Effectiveness of psychosocial interventions on the burden and quality of life of informal caregivers of hemodialysis patients: A systematic review. Disability and Rehabilitation, 44(26), 8176–8187. https://doi.org/10.1080/09638288.2021.2013961.
  • Sousa, H., Bártolo, A., Ribeiro, O., & Figueiredo, D. (2022). A family-centred perspective on the arteriovenous fistula in end-stage renal disease: Findings from dyadic interviews. Scandinavian Journal of Caring Sciences, 36(2), 426–438. https://doi.org/10.1111/scs.13055.
  • Sousa, H., Ribeiro, O., Costa, E., Christensen, A. J., & Figueiredo, D. (2022). Establishing the criterion validity of self-report measures of adherence in hemodialysis through associations with clinical biomarkers: A systematic review and meta-analysis. Plos One, 17(10), e0276163. https://doi.org/10.1371/journal.pone.0276163.
2023
  • Sousa, H., Ribeiro, O., Christensen, A. J., & Figueiredo, D. (2023). Mapping Patients’ Perceived Facilitators and Barriers to In-Center Hemodialysis Attendance to the Health Belief Model: Insights from a Qualitative Study. International Journal of Behavioral Medicine, 30(1), 97–107. https://doi.org/10.1007/s12529-022-10075-9.
  • Oliveira, J., Sousa, H., Bártolo, A., Figueiredo, D., & Ribeiro, O. (2023). Illness perception and treatment adherence in haemodialysis: A systematic review. Psychology, Health & Medicine, 28(7), 1641–1655. https://doi.org/10.1080/13548506.2022.2099559.
  • Sousa, H., Ribeiro, O., Christensen, A. J., & Figueiredo, D. (2023). Designing family-based interventions in kidney failure: The perspectives of the triad patients on haemodialysis/family caregivers/healthcare professionals. British Journal of Health Psychology, 28(3), 672–689. https://doi.org/10.1111/bjhp.12647.
2024
  • Sousa, H., Ribeiro, O., Aleixo, B., Christensen, A. J., & Figueiredo, D. (2024). Evaluating the psychometric properties of patient-reported outcome measures for assessing symptoms in hemodialysis: A systematic review using COSMIN guidelines. Journal of Pain and Symptom Management, 67(1), 34–57. https://doi.org/10.1016/j.jpainsymman.2023.09.016.
  • Sousa, H., Ribeiro, O., Bártolo, A., Costa, E., Ribeiro, F., Rodrigues, M., Paúl, C., & Figueiredo, D. (2024). The Connected We St@nd programme: A feasibility pilot study of an online self-management intervention for adults on in-centre haemodialysis and family caregivers. British Journal of Health Psychology [Epub ahead of publising]. https://doi.org/10.1111/bjhp.12715.
  • Sousa, H., Ribeiro, O., & Figueiredo, D. (2024). The Hemodialysis Distress Thermometer for Caregivers (HD-DT-C): Development and testing of the psychometric properties of a new tool for screening psychological distress among family caregivers of adults on hemodialysis. Quality Of Life Research [Epub ahead of publising].  https://doi.org/10.1007/s11136-024-03627-x.
PAPERS PUBLISHED IN NATIONAL JOURNALS
2022
  • Rofino, R., Figueiredo, D., & Ribeiro, O. (2022). Impacto da pandemia COVID-19 nos profissionais de saúde em contexto de hemodiálise. Psicologia Saúde & Doenças, 23(1), 96-108. https://doi.org/10.15309/22psd230110
PUBLISHED ABSTRACTS
2019
  • Figueiredo, D., Sousa, H., Ribeiro, F., Paúl, C., Costa, E., Miranda, V., & Ribeiro, O. (2019). What do WE know about arteriovenous fistula? A family-centred perspective on the care of vascular access in end-stage renal disease. Journal of Vascular Access, 20(2), S3. https://doi.org/10.1177%2F1129729819872288.
2020
  • Figueiredo, D., Frontini, R., Sousa, H., Ribeiro, O., Paúl, C., Costa, E., Miranda, V., & Ribeiro, F. (2020). “How do I get information about my end-stage renal disease?”: Orientations for the development of health literacy interventions. Kidney International Reports, 5(3), S198–S199. https://doi.org/10.1016/j.ekir.2020.02.506.
  • Figueiredo, D., Sousa, H., Frontini, R., Ribeiro, F., Paúl, C., Costa, E., Miranda, V., & Ribeiro, O., & (2020). “Living with our own fistula”: A family-based perspective about the impacts of vascular access in end-stage renal disease. Kidney International Reports, 5(3), S104. https://doi.org/10.1016/j.ekir.2020.02.258.
  • Figueiredo, D., Sousa, H., Ribeiro, O., Frontini, R., Costa, E., Miranda, V., Ribeiro, F. (2020). “In OUR own terms”: Dyads expectations about a family-based self-management intervention in end-stage renal disease. Kidney International Reports, 5(3), S198. https://doi.org/10.1016/j.ekir.2020.02.505.
  • Figueiredo, D., Sousa, H., Ribeiro, F., Paúl, C., Costa, F., Frotini, R., Miranda, V., & Ribeiro, O., (2020). “What do we need the most?” Exploring the unmet needs of couples coping with end stage renal disease. Kidney International Reports, 5(3), S127. https://doi.org/10.1016/j.ekir.2020.02.321.
  • Sousa, H., Afreixo, V., Frontini, R., Ribeiro, F., Paúl, C., Costa, E., Ribeiro, O., & Figueiredo, D. (2020). “No matter what I do, it matters how WE feel”: Exploring the associations between patients’ and family members’ psychological distress and treatment adherence in end-stage renal disease. Journal of Statistical on Health Decision, 2(2), 34-35. https://doi.org/10.34624/jshd.v2i2.19545.
  • Sousa, H., Afreixo, V., Frontini, R., Ribeiro, F., Paúl, C., Costa, E., Ribeiro, O., & Figueiredo, D. (2020). “Together WE can make it better”: Should family-based interventions be considered to promote health-related quality of life of patients with chronic physical conditions? Journal of Statistical on Health Decision, 2(2), 36-37. https://doi.org/10.34624/jshd.v2i2.19548.
2021
  • Figueiredo, D., Sousa, H., Frontini, R., Paúl, C., Costa, E., Miranda, V., Ribeiro, F., & Ribeiro, O. (2021). “The secret questions in a box”: What do patients and families really want to know about end-stage renal disease?. Kidney International Reports, 6(4):S345. https://doi.org/10.1016/j.ekir.2021.03.828.
  • Figueiredo, D., Sousa, H., Bundchen, D., Ribeiro, O., & Costa, E. (2021). Are there “hidden” benefits of intradialytic exercise? A meta-analytical study of its psychosocial effects for patients with end-stage renal disease. Kidney International Reports, 6(4): S225-S226. https://doi.org/10.1016/j.ekir.2021.03.547.
  • Figueiredo, D., Sousa, H., Amado, L., Miranda, V., Costa, E., Frontini, R., Ribeiro, F., & Ribeiro, O. (2021). Undergoing hemodialysis during covid-19 lockdown: Exploring patients’ and family caregivers’ experiences. Kidney International Reports, 6(4): S344-S345. https://doi.org/10.1016/j.ekir.2021.03.826.
  • Figueiredo, D., Sousa, H., & Ribeiro, O. (2021). “Hopes & fears”: Opposite sides of the same coin while waiting for renal transplantation?. Kidney International Reports, 6(4): S345. https://doi.org/10.1016/j.ekir.2021.03.827.
  • Figueiredo, D., Sousa, H., & Ribeiro, O. (2021). “Are you listening to our concerns?”: Exploring the dyadic perspective of couples dealing with end-stage renal disease. Kidney International Reports, 6(4): S346. https://doi.org/10.1016/j.ekir.2021.03.830.
  • Figueiredo, D., Sousa, H., & Ribeiro, O. (2021). “My parent has end-stage renal disease”: Exploring the unmet needs of adult children caring for their parents on hemodialysis. Kidney International Reports, 6(4): S345-S346. https://doi.org/10.1016/j.ekir.2021.03.829.
  • Bundchen, D., Sousa, H., Figueiredo, D., & Costa, E. (2021). Intradialytic exercise improves functional capacity, muscle performance and vitality in patients with end-stage renal disease: Results from an Umbrella Review. Revista Brasileira de Pesquisa em Ciências da Saúde (RBPeCS), 8. Available at: http://revistas.icesp.br/index.php/RBPeCS/issue/view/250/showToc.
  • Oliveira, J., Sousa, H., Bártolo, A., Figueiredo, D., & Ribeiro, O. (2021). “What WE think, matters!” Exploring the Acceptability of an Online Assessment Protocol in End-Stage Renal Disease. Revista de Investigação & Inovação em Saúde, 1, 12. Available at: https://www.academia.edu/94149456/_What_we_think_matters_Acceptability_of_an_Online_Assessment_Renal_Disease?uc-sb-sw=108995583.
2022
  • Figueiredo, D., Silva, D., Sousa, H., Bartolo, A., & Ribeiro, O. (2022). Quality of life of family caregivers of patients undergoing in-center hemodialysis during the COVID-19 pandemic: Preliminary results. Kidney International Reports, 7(2): S388.https://doi.org/10.1016/j.ekir.2022.01.935.
  • Figueiredo, D., Sousa, H., Bartolo, A., Paúl, C., Costa, E., Miranda, V., Ribeiro, F., Ribeiro, O. (2022). Perceived barriers and facilitators of adherence to hemodialysis dietary and fluid restrictions: Insights from a qualitative study. Kidney International Reports, 7(2): S246-S247. https://doi.org/10.1016/j.ekir.2022.01.602.
  • Figueiredo, D., Sousa, H., Bartolo, A., Oliveira, J., Rodrigues, M., Paúl, C., Costa, E., Miranda, V., Ribeiro, F., Ribeiro, O. (2022). “#Looking_to_Stay_Connected”: Characteristics of patients with ESRD and family caregivers who signed up for an online intervention during the COVID-19 pandemic. Kidney International Reports, 7(2): S246-S247. https://doi.org/10.1016/j.ekir.2022.01.977.
  • Figueiredo, D., Sousa, H., Bartolo, A., Paúl, C., Costa, E., Miranda, V., Ribeiro, F., Ribeiro, O. (2022). Is there a ‘Silver Lining’ in ESRD?: A mixed-methods study exploring the perspective of patients undergoing hemodialysis. Kidney International Reports, 7(2): S246-S247. https://doi.org/10.1016/j.ekir.2022.01.770
  • Figueiredo, D., Bartolo, A., Sousa, H., Rodrigues, M., Ribeiro, O. (2022). Effectiveness of ICT-based interventions for promoting medication adherence in kidney transplant recipients: A systematic review. Kidney International Reports, 7(2): S246-S247. https://doi.org/10.1016/j.ekir.2022.01.803.
  • Sousa, H., Ribeiro, O., Christensen, A., & Figueiredo, D. (2022). Purpose in life and caregiver burden in kidney failure: Preliminary results from a hierarchical multiple regression analysis. Journal of Statistics on Health Decision, 4(1), 10-13. https://doi.org/10.34624/jshd.v4i1.28552.
  • Aleixo, B., Sousa, H., Figueiredo, D., Ribeiro, O. (2022). #Together_WE_Stand_In_Kidney_C@re: Using social media to help raise chronic kidney disease awareness. The Psychologist: Practice & Research, 5(2), S150. Available at: https://www.ordemdospsicologos.pt/ficheiros/documentos/supplement_2022_abstracts.pdf
2023
  • Figueiredo, D., Sousa, H., Costa, E., Ribeiro, F., Paúl, C., Ribeiro, O. (2023). Challenges perceived by adults undergoing maintenance hemodialysis: Insights from a qualitative study to inform the design of self-management interventions in renal care settings. Kidney International Reports, 8(3): S369. https://doi.org/10.1016/j.ekir.2023.02.833.
  • Figueiredo, D., Sousa, H., Paúl, C., Costa, E., Rodrigues, M., Ribeiro, F., Ribeiro, O. (2023). Supporting the ‘Connected We St@nd’ experience: Steps taken to inform the development of an online self-management intervention for adults on hemodialysis and family caregivers. Kidney International Reports, 8(3): S368-S369. https://doi.org/10.1016/j.ekir.2023.02.832.
  • Figueiredo, D., Sousa, H., Paúl, C., Bartolo, A., Costa, E., Rodrigues, M., Ribeiro, F., Ribeiro, O. (2023). ‘Connected We St@nd’: Preliminary effects of an online couple-based intervention for adults on hemodialysis and their spouses. Kidney International Reports, 8(3): S368. https://doi.org/10.1016/j.ekir.2023.02.831.
  • Figueiredo, D., Sousa, H., Paúl, C., Costa, E., Rodrigues, M., Ribeiro, F., Ribeiro, O. (2023). ‘Getting Connected’: Motivations to enroll in an online self-management group intervention for adults on hemodialysis and family caregivers. Kidney International Reports, 8(3): S369-370. https://doi.org/10.1016/j.ekir.2023.02.834.
  • Sousa, H., Ribeiro, O., Figueiredo, D. (2022). Self-management challenges perceived by patients on hemodialysis: Insights from aqualitative study to inform the design of health psychology interventions. The Psychologist: Practice & Research, 5(2), S151. Available at: https://www.ordemdospsicologos.pt/ficheiros/documentos/supplement_2022_abstracts.pdf
  • Sousa, H., Figueiredo, D., Ribeiro, O., & Christensen, A.J. (2022). Supporting the WE-Disease experience in kidney failure: Steps taken to inform the design of family-based interventions in renal care. In A. Silva, A. Teixeira, & Campos A.G. (Eds)., Book of abstracts of the Research Summit 2022 (p. 604).  Universidade de Aveiro. https://doi.org/10.48528/6dz9-d129
WORKSHOPS AND CONFERENCES
2019
  • “Psychological and behavioral factors in end stage renal disease: An interactive approach”, Conference by Professor Alan Chriestensen, East Carolina University (EUA), Escola Superior de Saúde, Universidade de Aveiro, Aveiro, Portugal, 26 de junho.

OUR AWARDS AND DISTINCTIONS

ARTICLES IN SCIENTIFIC JOURNALS
Best Oral Communication (3rd place) at the I International Congress on Vascular Access, September 26-27, 2019, Coimbra (http://apoava.pt/ciav19/). Title: What do we know about arteriovenous fistula? A family-centred perspective on the care of vascular access in end stage renal disease. Authors: Daniela Figueiredo, Helena Sousa, Fernando Ribeiro, Constança Paúl, Elísio Costa, Vasco Miranda, Óscar Ribeiro.